ReNU Syndrome UK

Renewing Hope for Every Family Affected by ReNU Syndrome

We are a UK-based charity dedicated to supporting individuals and families affected by ReNU Syndrome.
Whether you’re a family that has a new diagnosis or seeking support for a family you know, we’re here for you—without age limits, without judgment. 

About ReNU Syndrome

Support and Connection

ReNU Research and awareness

Get in Touch

REnu warriors

Share | Support | Stories

Samuel’s Story 
Michaela shares her son Samuel’s diagnostic journey and how the ReNU community changed their lives. 

Bow’s Story
Bow’s family share how they are spreading awareness and their hope for the future

Elodie’s Story
A family’s journey through uncertainty, diagnosis, and resilience, this story of Elodie and ReNU syndrome reveals the power of love, advocacy, and hope in the face of complex medical challenges.